Project E3
Engage, Empower, Elevate
Keywords
Youth Advisory Boards (YAB), Comparative Effectiveness Research (CER)
Type of Research
Community-based participatory
Summary
This project has 3 aims:
AIM 1: Define Youth Engagement: With Youth Co-Investigators, define meaningful research engagement for youth and assess, refine, and select the measures to effectively evaluate and report outcomes for youth engagement.
AIM 2: Co-Develop Solutions with Youth: Form the YAB Research Consortium to co-develop YAB Best-Practice Guidelines and Engagement Evaluation Tool(s) for the effective engagement of youth in YABs.
AIM 3: Co-Test Solutions with Diverse Youth: In a diverse sample of YABs, describe the engagement processes and outcomes in YABs that use the YAB-Package compared to YABs that do not use the package.
Significance
This study will advance the science of engagement for patient-centered comparative effectiveness research by providing evidence on the efficacy of youth engagement in YABs and insights into contextual factors that influence youths’ engagement in YAB. this project supports increasing the diversity of research partners by refining practical measures intended to measure youth partner engagement.
Impact
When youth have a meaningful role in research, research teams increase the visibility of youth perspectives, enrich research agendas, and enhance the uptake of youth insights by decision-makers. In addition to increasing the feasibility and validity of research, diverse youth engagement fosters reciprocal skills development and empowerment among adult and youth collaborators.
Translational Science Benefits Model* Benefits | ||
| Demonstrated: Benefits are those that have been observed and verifiable. Potential: Benefits are those logically expected with moderate to high confidence | ||
| Evaluate and develop best practices and processes to meaningfully engage youth in YABs for research teams studying health care delivery. Potential |  | Health Care Delivery |
| Assess outcome measures to evaluate the engagement of youth in YABS and their influence on the research process. Potential | | Health Care Quality |
*The Translational Science Benefits Model is a framework designed to help public health and clinical scientists demonstrate the impact of their work in the real world. The Translational Science Benefits Model and Translating for Impact Toolkit © 2017-2023, created by the Institute of Clinical and Translational Sciences at Washington University in St. Louis and available at translationalsciencebenefitsmodel.wustl.edu, is licensed under Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0).
Implications for Reducing Health Disparities
Youth are often underrepresented in research, and hold many intersecting identities—racial, ethnic, gender, geographic, among others—that influence the perspective they bring to research. The inclusion of YABs solicits an age-based perspective, followed by specific project-based perspectives (e.g., LGBTQ+ youth; rural youth; youth with a particular diagnosis) to best define research priorities, strategies, and outcomes most relevant to young peoples’ needs.
