Patient Resources
Pre-Op Instructions
Information about Anesthesia
Have questions about the use of anesthesia during your procedure? The American Society of Anesthesiologists (ASA) posted these YouTube videos to answer your questions:
Post-op Instructions for Craniotomy
Directions to University of Colorado Hospital
Listed below are the names and links of support groups and organizations that can help patients and their families learn more about and cope with their neurological conditions and diseases.
Local Support Groups
- Rocky Mountain Stroke Association's goal is to provide education on stroke prevention for all and support stroke survivors and their families throughout recovery.
- University of Colorado Cancer Center Center Information and Counseling Line: 800-525-3777
- General Cancer Support Groups and Educational Programs:
- Rocky Mountain Cancer Centers at various locations in Colorado:
Website: www.rockymountaincancercenters.com
Phone: 888-259-7622
Alzheimer's
National Alzheimer's Association
Brain Injury
Brain Injury Association serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI).
Brain Tumor
The American Brain Tumor Association (ABTA) is a recognized resource for comprehensive, up-to-date information and support for the brain tumor patients, families and caregivers who are living with this disease. They provide critical funding to researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, with the ultimate goal of finding a cure.
American Cancer Society Cancer Survivor's Network: csn.cancer.org
The Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.
The Brain Tumor Foundation For Children, Inc. is dedicated to helping children with brain and spinal cord tumors and their families. They provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children with brain tumors.
The National Brain Tumor Society is a comprehensive resource for patients, families, caregivers, researchers and medical professionals. They bring together research and patient services.
The Children's Brain Tumor Foundation's mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Epilepsy
The Epilepsy Foundation is dedicated to the welfare of people with epilepsy and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure
Pain
The American Pain Foundation mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment.
Parkinson's Disease
National Parkinson Foundation, Inc. goal is to improve the quality of Parkinson's care through research, education and outreach
Pediatric Neurosurgery
American Society of Pediatric Neurosurgeons is dedicated to the advancement of all aspects of the subspecialty of pediatric neurological surgery.
Childhood Brain Tumor Foundation's mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected.
Hydrocephalus Association's goal is to eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, education and advocacy for individuals, families and professionals dealing with hydrocephalus
Pediatric Brain Tumor Foundation of the United States works toward supporting medical research, increasing public awareness, aiding in the early detection & treatment of brain tumors and provide educational and emotional support for childen and their families affected by brain tumors.
The Spina Bifida Association support children and adults who live with the challenges of spina bifida.
ThinkFirst programs educate young people about their personal vulnerability and the importance of making safe choices to avoid brain and spinal cord injuries.
World Arnold-Chiari Malformation Association mission statement says they are committed to the most accurate and current understanding of Chiari Malformations and treatments
Pituitary Disease
The Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.
Stroke/Cerebrovascular Disease
American Heart Association National Center provides information on the symptoms of stroke and preventing one.
American Stroke Association offers support and information for stroke patients, caregivers and their families.
National Stroke Association focuses 100% of its efforts on stroke to lower the incidence and impact of stroke by developing compelling community outreach programs, calling for continued improvement in the quality of stroke patient care, and educating both healthcare professionals and the general public about stroke.
ACLS Suspected Stroke Algorithm​
Spine Disorders
Understand Spine Surgery is a website dedicated to patient education about surgery options