Pediatric Stroke Resources
Our Pediatric Stroke Clinic treats a variety of conditions and has different resources available, including resources through our unique partnership with Children's Hospital Colorado.
The brochures below offer information and details on some of the clinics, the diseases or conditions we treat, along with some of the medications we may use to help treat patients. Please contact us if you have questions about any of the programs or information at (303) 724-0724 or toll free at (888) 297-0724.
Programs
We treat two major types of pediatric stroke-related conditions through our two stroke programs.
Our Pediatric Stroke Program treats patients who are diagnosed with stroke or stroke-related conditions.
Our Neonatal Neurology Program treats newborn patients who are diagnosed with a brain injury or other specific neurological needs.
Diagnoses
Our Pediatric Stroke and Neonatal Neurology Clinics see patients with a variety of diagnoses. The following are brochures on some of the most common conditions we treat:
Arteriovenous Malformation
Cavernous Malformation
Cerebral Sinus Venous Thrombosis
Childhood Arterial Ischemic Stroke
Moyamoya
Perinatal Arterial Ischemic Stroke
Roundup River Ranch 2022
Roundup River Ranch is a specialized camp designed specifically for children with unique, rare, and serious illness or diagnoses. Our pediatric stroke patients generally qualify for this camp. Roundup River Ranch camp gives these kids a chance to feel like ordinary kids. They help campers and their families find joyful moments, lasting friendships, and form great memories.
Our pediatric stroke patients can benefit from the experiences and the resources available through this wonderful program. Learn about the 2022 schedule here, as well as their super fun Joy Delivered boxes, a box that arrives with fun surprises 4 times a year.
Contact our psychosocial team if you have questions about this program and if your child qualifies for any of these free resources.
Joy Delivered Fliers:
Helpful Resources for Stroke Survivors and their Families
A Stroke Can Happen at Any Age by IAPS - video (length 8:41)
This short video about pediatric stroke was created by the International Alliance for Pediatric Stroke and explains how stroke can happen to people of all ages.
There are many organizations and resources available to patients and families who have experienced pediatric stroke.
The links below are organizations or information providing education and resources regarding the prevention, treatment and recovery from pediatric stroke.
Brain Injury Alliance Colorado
This local resource provides support, services, and education for Colorado residents who have experienced a brain injury, including stroke.
Roundup River Ranch Camp
This specialized camp hosts a variety of camps specifically designed for children with serious illnesses and their families. They host a summer camp for children with Neurological Conditions or Craniofacial Anomalies which some of our stroke patients attend. In addition, they provide a family camp for families with children with Neurologic Disorders.
Children's Hemiplegia and Stroke Association
CHASA is a non-profit started by parents of children with hemiplegia and other related conditions that can result from pediatric stroke. The organization is designed to help children who have survived an early brain injury that resulted in hemiplegia or hemiparesis (weakness on one side of the body). Their site provides resources, news and opportunities to connect and learn about others in similar situations.
International Alliance for Pediatric Stroke
This site dedicated to collaboration between international stroke communities advocates for children who have suffered a stroke. They have many resources and opportunities along with inspirational stories about other families to encourage awareness about pediatric stroke.
This organization works to bring awareness, education and information about stroke, including stroke in children. It includes warning signs, risks and is dedicated to prevention, diagnosis and treatments to save lives from stroke.
Clotcare
This is an online resource page with many links, articles, references and a blog to provide information for both patients and clinicians with information and resources to prevent blood clots, strokes and heart attacks.
Pediatric Venous Thrombosis and Pulmonary Embolism
This brochure, created by the HTC several years ago outlines an overview for patients and providers focusing on awareness, prevention, treatment and support of families and patients facing venous thrombosis or pulmonary embolism in children or young adults.
Our HTC hosts a Pediatric Stroke Parent Support Group that meets monthly on the second Monday of the month. We usually meet here at our HTC, but since the beginning of the COVID-19 pandemic we have been meeting online. Find out more details about our meetings and ways to get involved by going to our webpage.