Clotting Disorder Resources
Helpful Resources for Patients and Families with Clotting Disorders
A Look at Deep Vein Thrombosis and Pulmonary Embolism by the CDC - video (length 10:13)
The Centers for Disease Control and Prevention have created a video to explain what Deep Vein Thrombosis (DVT) or a Pulmonary Embolism (PE) can look like.
These are dangerous blood clots and are life threatening. Learn more about DVT and PE in this video, including personal experience, symptoms and treatment.
There are many organizations and resources available to patients and families who are living with thrombosis and clotting disorders. The links below are just a few organizations with education and information to manage and understand clotting disorders.
The National Blood Clot Alliance
This non-profit, voluntary health organization is focused on prevention, diagnosis and treatment of life-threatening blood clots. Their site provides patient stories, educational materials and information regarding clotting disorders as well as up to date news.
Vascular Cures
Formerly known as The Vascular Disease Foundation, Vascular Cures is a non-profit focused on vascular diseases, this organization promotes awareness and education on disease and illness related to the vascular (circulatory system) including Deep Vein Thrombosis (DVT). Their site provides helpful resources and information that may be of use to thrombosis patients.
The Centers for Disease Control and Prevention
The CDC is a major component of the Department of Health and Human Services. Their mission is to protect health and promote quality of life through prevention and control of disease, injury and disability. This site has a wealth of information for patients and families living with thrombosis and clotting disorders. They have many articles and links with materials to assist both patient and provider.
This Is Serious
This is Serious is a campaign designed and produced by the Duke University Medical Center’s Hemostasis and Thrombosis Center. They partnered with the Centers for Disease Control to create a vibrant website explaining DVT and PE, risks, prevention tips and information. It specifically targets women and their unique risk factors that can increase the potential for blood clots.
Pediatric Venous Thrombosis and Pulmonary Embolism
This brochure, created by the HTC several years ago outlines an overview for patients and providers focusing on awareness, prevention, treatment and support of families and patients facing venous thrombosis or pulmonary embolism in children or young adults.
In addition, several brochures regarding pediatric stroke and related conditions and resources for families can be found at our Pediatric Stroke Resources page.