The eXtraordinarY Kids Research Program
Since 2007, our eXtraordinarY Kids Clinic team has been conducting clinical research in X&Y chromosome variations in order to learn more about the medical problems, developmental milestones, learning, language, motor skills, behavior and emotions in a wide age-range of individuals with X&Y chromosome variations.
Through research, we hope to better understand the strengths and weaknesses for individuals with X&Y chromosome variations, as well as how genes on the X&Y chromosomes may influence these different areas. There is limited research on these conditions currently. Research is important because it helps guide clinical care and hopefully improve quality of life for individuals living with X&Y chromosome variations. If you would like to get in contact with our research team please contact extraordinarykids@ucdenver.edu.
eXtraOrdinarY Newsletters
The eXtraordinarY Kids Program is leading the way with the announcement of NASCARR! The Network for Advancing Sex Chromosome Aneuploidy Research Readiness (NASCARR) is a consortium of academic centers across the U.S. who share the goals of improving the lives of individuals with sex chromosome aneuploidies by advancing innovative research, clinical expertise and education through collaborations between scientists, health care providers, and patient advocacy organizations. NASCARR is one of 21 consortia in the Rare Diseases Clinical Research Network (RDCRN) funded by the NIH through NCATS, NICHD, and NHGRI in 2025, with aims to expand and support research in advancing the field into clinical trials of the future. For more information, visit nascarr.RareDiseasesNetwork.org