Mission: To create and sustain investigators access to high-value data assets that are discoverable, accessible, and reliable to facilitate research in data sciences and discovery by providing ‘bleeding edge’ informatics expertise and tools.
A data science program cannot be competitive without access to rich data sources and informatics resources that enable rapid identification, acquisition, integration, and delivery of data sets that may be massive in size, diverse in structure, including unstructured text document, and complex in content, semantics, terminologies, and quality. A large-scale, flexible data infrastructure that leverages both traditional and next-generation data environments and tools must be implemented and maintained as a core service asset and capability of D2V. While some elements of this infrastructure are being implemented within the Colorado Center for Personalized Medicine (CCPM) and can be leveraged, D2V will require specialized mission-specific resources, such as advanced record linkage methods, to service the innovative data needs and use of D2V investigators.
The D2V Data & Informatics Core partners with Health Data Compass (HDC) to use common platforms and support structures. D2V will leverage the substantial existing institutional investments in HDC’s HIPAA-compliant data center, common resources, data-sharing policies, procedures and regulatory framework. Unlike HDC, D2V will implement novel data architectures and informatics methods to remain on the “bleeding edge” of Big Data management.
This core provides tools and expertise in:
1.Data management and curation, 2.Data discovery, 3.Data integration and person level linkages, 4.Federated data sharing methods/technologies, 5.Data/metadata repositories, analytic code, software, and results for data visualization, interpretation, and reuse., and 6.Support of open science and research reproducibility.
Mission: To become the most trusted resource on how best to engage diverse stakeholders in the work of research, implementation and dissemination in health care.
This core will advance the science of Deliberative Stakeholder Engagement in Health Care (DSEHC). The core beliefs in DSEHC are based in models of democratic political philosophy, which holds that the best decisions for a community are those arrived at by an engaged and informed populace coming together to explore competing values and mutually-acceptable solutions to shared problems. Further, DSEHC recognizes that stakeholder engagement is a science, with specific aims, a variety of potential methods and discrete products, and that for some topics in health care it cannot be assumed that all relevant stakeholders are already well-informed and capable of meaningful engagement, therefore specific methods of stakeholder engagement must be developed and tested.
The proposed Resource Center on DSEHC will provide the following:
Technical assistance for:
•CU researchers who plan to engage various stakeholder in their research, •Clinical leaders seeking to engage patients and other stakeholders in organizational decisions, and •Organizational leaders and policy makers who wish to engage various stakeholders in policy decisions, and •In depth understandings of governance and policies that support engagement, trust, and collaboration. •A resource library of locally available expertise, stakeholder engagement opportunities and forums.
Innovation and research on optimal methods of DSEHC according to the characteristics of the population, the issue under discussion, the stakeholders one seeks to engage, the researchers or other health professionals involved and other factors.
Training in DSEHC, including programs for health professional students focusing on patient and community engagement and leadership training programs focused on stakeholder engaged quality improvement in health care organizations.
CRIIU is a dedicated unit to support researchers and innovators with health informatics solutions. We work with faculty in many capacities including pre-grant submission consultation, innovation solutions, prototyping, and execution. The CRIIU team includes experts in clinical informatics, data standards, NLP, and user-centered design. The Team includes two dedicated certified Epic analysts, with combined expertise in EpicCare Ambulatory, ClinDocs (Inpatient), Stork (Ob-Gyn), Clinical Decision Support, Reporting and more! We work closely with the Research Administration team and the UCHealth Informatics Epic teams to help faculty navigate governance and approval for Epic-related builds and integrations, and work to find the right solution to meet your needs. We are open for business!