The Inherited Metabolic Diseases (IMD) clinic is comprised of a multidisciplinary staff, internationally recognized for their expertise in relation to the diagnosis and treatment of various metabolic disorders.
The IMD nutrition clinic includes three metabolic nutritionists and is the only clinic in the Rocky Mountain Region providing comprehensive metabolic nutrition services.
Nutritional services provided at the IMD nutrition clinic include follow-up of abnormal newborn screening results, nutritional management and education for both inpatients and outpatients with inborn errors of metabolism (IEMs).
Laurie Bernstein, MS, RD, FADA, FAND
Professor of Pediatrics
Director, IMD Nutrition
Phone: (303) 724-2341
Casey Burns, RD, CSP, CNSC, Metabolic Dietitian
Phone: (303) 724-2343
Sommer Gaughan, RD, CSO, Metabolic Dietitian
Phone: (303) 724-2348
An educational tool for patients and their families when selecting healthy foods on a phe-restricted diet.
Modules offered include:
A tool for patients and their families when completing diet records.
Guides offered include:
The Low Protein Food Store is located in:
Children's Hospital Colorado
13123 East 16th Avenue
Aurora, Colorado 80045
Store Telephone: (303) 724-2366
Hours of Operation:
Working remotely, call for information.
To place an order, please call:
Sommer Gaughan at (303) 724-2348
COURAGE CLASSIC - GENE TEAM
What is The Courage Classic?
A renowned cycling event in Colorado since 1989, the Courage Classic is a two-day journey fueled by individual and team fundraising efforts that benefit Children’s Hospital Colorado. Thousands of cyclists, hundreds of volunteers, and several sponsors and friends participate each year to support the greatest needs of Children’s Hospital Colorado. Beginning and ending in Copper Mt Resort, this 157-mile course through Summit County during the summertime makes it one of the most picturesque cycling tours in the state.
The Gene Team
This amazing team was created and has been captained by Laurie Bernstein, MS, RD, FADA since 1999. Our mission is to support the incredible patients and families of the Clinical Genetics and Metabolism section. As the team continues to grow Morgan Drumm, DTR and Sommer Gaughan, RD, CSO plan to join Laurie as co-captains for the upcoming 2021 ride year. Riders of this team include clinicians, patients, family members, friends, and sponsors. The Clinical Genetics and Metabolism section provides medical and nutrition management to patients across Colorado and Wyoming. Money raised by The Gene Team has helped to provide life sustaining formula, specialty medical food, family conference attendance, camps, educational tools, ropes course, and research. Passion and dedication to the children and families of the Clinical Genetics and Metabolism section has driven The Gene Team to raise more than $1.25 million over the past 20 years.
Look for our wonderful jerseys and swag along the course…
Registration and Donations
For more information about the ride, including registration and donation information, click here.
What is Metabolic Camp?
The IMD nutrition team hosts an annual metabolic camp for patients and their families. Our camp was established in 2005 and is supported by our generous donor: The Gene Team. Additional sponsors are Nutricia NA, Vitaflo USA, and Ajinomoto Cambrooke. Camp offers a magical opportunity for patients to make connections and new friends with their peers who are also living with a similar metabolic disorder. Additionally, parents can share their journey with other parents, giving them a chance to create a support system of their own.
Metabolic camp is held at the Vee Bar Guest and Dude Ranch near Laramie, WY. While at camp, patients and parents get to experience horseback riding, hiking, fishing, hayrides, art projects, culinary experiences, scavenger hunts and roping. We also share the emotional journey of chronic disease in a safe and fun environment. Patients and parents are given a truly rare opportunity to attend camp without the worry of what foods will be available for them/their child to eat. All meals are prepared by our esteemed low pro parent chef, camp attendees and staff and include a plethora of foods that fall within their diet restriction. Patients pack their clothes and medical food and then the IMD nutrition team takes care of the rest.
Eat Right Stay Bright is an anticipatory guidance tool, developed by Children's Hospital Colorado to aid healthcare professionals in the treatment of patients with PKU.
To download chapters click here:
Each chapter has sections that include: