Research has shown that parents of autistic children have heightened levels of stress and burnout. This webinar will describe recent findings that have identified differences in patterns of burnout and types of resilience between mothers and fathers. Ways that providers can support families and that families can think about building resiliency in their day-to-day lives will also be discussed.
Speaker: Courtney Paisley, PhD, Postdoctoral Fellow, Developmental Pediatrics, CU-AMC/Children's Hospital Colorado
Panel Facilitator: Kristen Kaiser, MA, MPH
Webinar (Runtime X:XX)
Wednesday, March 15, 2023
10:00 - 11:30 a.m. (MT)
Fetal alcohol spectrum disorders (FASD) impact an estimated 1-5% of people in the United States. Yet, most professionals and community members have not had the opportunity to learn about this common condition and how to best support people with FASD. This presentation will use case-based learning to illustrate how attendees can begin to implement FASD-informed care across the lifespan in their practice. Useful and practical resources will be offered.
Intended audience: psychologists, medical providers, individuals with FASD and their families
Christie L. M. Petrenko, Ph.D.
Research Associate Professor
Mt. Hope Family Center, University of Rochester
This webinar will feature our CDC-funded work on Autism as we hear from four of our SEED investigators with updates on recent findings from SEED cohorts. Presenters and featured topics will include:
What’s Next for the Study to Explore Early Development: the SEED Follow-Up Study – Dr. Carolyn DiGuiseppi
The soon-to-be launched SEED Follow-Up Study aims to gain insights into the life course experiences of children with ASD and to improve our understanding of issues and needs as adolescents with ASD age into adulthood. This presentation will describe plans for the new SEED Follow-Up Study, including how it will be implemented and some of the key topics it will address.
Sleep Problems, Gastrointestinal Problems, and Anxiety: Which Comes First? – Dr. Ann Reynolds
This presentation will review issues associated with sleep problems in preschool-age children in the Study to Explore Early Development.
The relationship between parental depression and anxiety and dysregulation in preschool children with and without ASD – Dr. Tessa Crume
This analysis seeks to determine if depression or anxiety in mothers, fathers or both parents is associated with externalizing and internalizing behaviors as well as sleep problems in children with and without ASD. In preliminary analyses we found that maternal anxiety, depression or both were more common among families with an autistic child compared to families of children without ASD. The prevalence of paternal depression, anxiety or both was not significantly different between families with and without an autistic child. Ongoing analyses will determine if parental anxiety or depression are associated with externalizing, internalizing or sleep issues among children with and without ASD.
Understanding Language and Social Regression in Children with Autism Spectrum Disorder (ASD): Findings from the Study to Explore Early Development – Dr. Nuri Reyes
The aim of this presentation will be to report the prevalence of language and social regression in preschool-aged children with ASD from a multi-site community-based sample. This presentation will also report the current developmental status of children with ASD who have a history of regression.
Intended audience: service providers, health care workers, researchers, educators, individuals with intellectual/developmental disabilities and their families
Archived webinar: Recording to be posted following the event
There is a high prevalence of co-occurring mental health challenges in children and teens with I/DD and these challenges have often become even more impactful during the COVID-19 pandemic. This talk will provide concrete strategies for understanding, identifying, and supporting mental health needs in this population.
School providers, nurses, HCP providers, clinical providers from non-mental health disciplines (Speech or OT for example), parents, any individual with introductory- to intermediate-level knowledge seeking to broader their understanding of mental health needs for children and youth with I/DD
Speaker: Rachel Sandercock, PhD, Post-Doctoral Psychology Fellow, JFK Partners
Archived Webinar: Runtime: 1:27
State, local, community and family voices, have long advocated for the importance, value, and benefit of early and equitable access to developmental screening and referral, as a tool to ensure that all children can thrive, grow, and learn. Partners will share findings from a recently completed needs assessment and share local solutions that address barriers and opportunities across various early childhood systems and programs to improve the early identification of developmental delay.
Health Care and Community Partners that have a role in any of the four steps of early identification of developmental delay, including but limited to: Parent Developmental Monitoring, Developmental/Autism Screening, Referral and Support Families to Accessing Developmental Services and Supports
Eileen Auer Bennett- Assuring Better Child Health & Development, Executive Director
Dawn Magnusson- PT, PhD, University of Colorado Anschutz Medical Campus, Assistant Professor School of Medicine, Physical Therapy
Kuang Oo-Denver Health, Refugee, Immigrant, and Migrant (RIM) Care Navigator
Betsy Ruckard-Denver Health, Refugee Services Coordinator, Refugee, Immigrant, and Migrant (RIM) Navigation Program
Michele Ebendick - Tri-County Health Department, Early Childhood Wellness Coordinator
Kristi Knuti Rodrigues, MD, MPH, Denver Health, Refugee, Immigrant, and Migrant (RIM) Navigation Program, Physician Lead
Local Community Partners
Archived Webinar: Runtime: 1:29:12
This presentation will provide information about trauma‐informed care, focusing on work with children and their families. We will discuss possible sources of trauma, trauma reactions, and an overview of interventions for individuals who experienced trauma. We will also discuss how to approach work with families from a trauma‐informed lens, in order to support individuals with trauma histories and avoid potential sources of re‐traumatization.
The intended audience for this webinar includes: service providers, care coordinators, and other professionals working with children and families
Lauren Berkovits, Ph.D., Licensed Clinical Psychologist, Assistant Professor,
Department of Pediatrics, University of Colorado School of Medicine
Archived Webinar: Runtime: 1:25:48
This webinar will describe a project aimed to improve access to care for children with ASD/DD, targeting underserved urban, rural, and frontier regions of the State of Colorado. This project involves provider education, capacity building, technical assistance, and direct care. We will review components of this program, reduction in wait list, provider satisfaction, and perception of self-efficacy. We also will review how the pandemic resulted in adaptations to the care provided.
Sandra L. Friedman, MD, MPH
Ann Reynolds, MD
Rebecca Wilson, PsyD
Elizabeth Coan, PsyD
Richard Boles, PhD
Sara Mattie, LCSW
Archived Webinar: Runtime: 1 hr 30 mins
The Colorado Department of Public Health and Environment and the Special Care Clinic at Children’s Hospital Colorado are part of a collaborative improvement and innovation network (CoIIN) funded by the HRSA Maternal and Child Health Bureau to test
and spread promising care delivery strategies and payment models for children with medical complexity (CMC). As part of their CMC-CoIIN work, the Colorado team used the Family Engagement in Systems Assessment Tool (FESAT), a new tool from Family Voices
that organizations can use to assess and improve family engagement in systems- level initiatives, helping to ensure that the voices of the individuals, families, and communities who receive services are included in the creation of the policies and
practices that govern those services.
The intended audience for this webinar includes: healthcare providers & students, child care professionals, school personnel, care coordinators, service coordinators and families interested in better understanding how partnering with families can improve services for children and youth.
Runtime: 1 hr 10 mins
There currently are long waiting lists for appointments to assess children for autism spectrum disorder and other developmental disabilities (ASD/DD), posing a major barrier to accessing care. Families may travel long distances for diagnostic evaluations and management of medications, other related medical problems, and behavioral issues. There also is a well-documented shortage of developmental behavioral pediatricians in Colorado and nationwide.
This presentation will provide some updates on a program to improve access of care for children with ASD/DD, particularly focusing on children and families residing in underserved urban, rural and frontier regions of the state. We will review some activities
that focus on using expertise from our academic medical center to support primary care providers to deliver needed care and services for their patients and families within the context of their medical home.
The intended audience for this webinar includes: healthcare providers, therapists, service coordinators and families interested in better understanding the initiatives underway to improve access to assessment and management for children with ASD/DD.
Speakers from Children’s Hospital Colorado, Developmental Pediatrics:
Runtime: 1 hr 31 mins
Current models of care in Colorado result in families waiting for a medical diagnosis to get the services they need. This trend is not unique to Colorado, but is a nationwide challenge. This presentation will
provide Colorado’s process for identifying children and youth with developmental and behavioral challenges, as well as current systems‐level work striving to improve access to developmental diagnoses and services.
The intended audience for this webinar includes: healthcare providers, child care professionals, school personnel, service coordinators and families interested in better understanding the challenges and
opportunities to improve developmental services for children and youth.
Substance misuse impacts the maternal and child health population disproportionately. With issues such as maternal substance use and substance exposure in newborns gaining a lot of attention across the nation, the Colorado Department of Public Health
and Environment (CDPHE) is expanding strategies to reach across Colorado. This presentation will provide information on the maternal and child health substance misuse projects, opioid overdose prevention efforts, marijuana prevention and education
efforts, and collaborative projects with state and local level partners that are addressing these issues.
Speaker: Shayna Micucci, MSW, Opioid Overdose Prevention Program Coordinator and Maternal and Child Health Substance Misuse Priority Lead, Violence and Injury Prevention-Mental Health Promotion Branch, Colorado Department of Public Health and Environment
We know that healthy communities are important so why is health equity often left out of our conversations on community engagement? In this dynamic and interactive session participants will learn how employing health equity strategies can make community
engagement work more intentional and effective. Participants will be given a brief overview of systems of oppression and equity/health equity. We will then examine the ways in which these systems effect our ability to engage with community. Participants
will then discuss the ways in which their own work does or does not utilize health equity strategies. Lastly, participants will be provided with tools on how to apply the health equity strategies learned to their own work.
Speaker: Angel Smith, Health Equity and Community Engagement Specialist, Children, Youth and Families Branch, Colorado Department of Public Health and Environment
With over 90% of Colorado mothers choosing to start breastfeeding, the need for education and support throughout our communities is higher than ever. From the NICU to the medical office to the child care professional, increased breastfeeding education
can lead to better support and healthier outcomes for our babies and families. This presentation will provide information on breastfeeding practices, supportive services, policies and advocacy efforts that can be incorporated into your community.
Healthcare providers, child care professionals, employers and families will better understand and be able to advocate for breastfeeding supportive practices in the NICU and hospital settings and how to create breastfeeding-friendly medical offices, workplaces and child care programs.
Speaker: Stacy Miller, PhD, RD, CLC, Breastfeeding Specialist, Early Childhood Obesity Prevention Unit, Colorado Department of Public Health and Environment
Colorado families are bombarded by various health messages every day. We maximize our messaging when all public health programs, health care providers, early care and education professionals, families and others work together to deliver consistent, accurate and consumer-tested messages. Speaking with One Voice provides nine audience-tested and Spanish trans created early childhood obesity prevention messages and supporting content that address important healthy lifestyle behaviors found most promising in preventing overweight and obesity before it begins among Colorado’s youngest children. This presentation has additional focus on healthy maternal weight and active play for early childhood.
Speaker: Emily Bash, MPH, RD, CLC, Nutrition Specialist, Early Childhood Obesity Prevention Unit, Colorado Department of Public Health and Environment.
This event presented the most recent CDC prevalence data for Autism Spectrum Disorders, a study of patient navigation for low income families with young children, and findings from the Colorado Parent Mentoring Program. This webinar is for care coordinators, health department personnel, school personnel, and other professionals working with children. Anyone is welcome to attend this free webinar at the live site or online.
Children with co-occurring Deafness or Hard of Hearing (DHH) and Autism Spectrum Disorder (ASD) often have a delayed diagnosis, therefore also have delayed intervention. Many professionals are unable to separate behaviors associated with deafness and hearing loss from those associated with autism. Furthermore, professionals with expertise in autism are often unable to communicate directly with children who are DHH who use sign language, are unfamiliar with deafness and how autism may impact their sign or spoken language communication both receptively and expressively. Children with dual diagnosis are often the most complex children that professionals in deafness and hearing loss need to screen, diagnosis and re/habilitate. The presence of this dual diagnosis can significantly complicate developmental outcomes and requires highly specialized intervention. This webinar is for care coordinators, health department personnel, school personnel, and other professionals working with children.
Significant advances in technology makes telehealth and telemedicine feasible, enhancing access to services and education. Our speakers will address efforts in Colorado to provide access to these methods with particular emphasis on the acceptance by families.
Following this event, the audience will better understand: