Definition:
Patient-centered Outcomes Research (PCOR)
Helps people and their caregivers communicate and make informed healthcare decisions, allowing their voices to be heard in assessing the value of healthcare options.
PCOR answers patient-centered questions, such as:
“Given my personal characteristics, conditions, and preferences, what should I expect will happen to me?”
“What are my options, and what are the potential benefits and harms of those options?”
“What can I do to improve the outcomes that are most important to me?”
“How can clinicians and the care delivery systems they work in help me make the best decisions about my health and health care?”
Reference: PCORI (Patient-Centered Outcomes Research Institute) Methodology Committee. 2013. “The PCORI Methodology Report.” pcori.org/research-we-support/research-methodology-standards
Patient Partner Training
The following training slides are for patient partners. The training support participation on the CRITICAL through providing background information. The training includes four brief sections that cover: an introduction to the CRITICAL; the role of advisory
committees in patient-centered research; orientation to research and patient-centered outcomes methods; and a description of the process CRITICAL will follow to develop a patient-centered research agenda. In addition, there are four handouts that
provide extra information related to the training.
Patient Partner Training Modules
Module 1: Introduction to CRITICAL
Module 2: Orientation to the Role of an Advisory Coalition
Module 3: Orientation to Research
Module 4: Developing a Research Agenda
Module 5: Formulating Research Questions
An Introduction to CRITICAL
Download the Introduction to CRITICAL (PDF)
Supporting documents:
CRITICAL Membership Agreement/Memorandum of Understanding
CRITICAL Ethics and Human Subjects Terms
CRITICAL Skills Checklist
Communication Self-assessment
Resources
The PCORI Methodology Report
Toolkit on Patient Partner Engagement in Research
Training for other stakeholder partners
Free CME courses are available ona wide variety of PCORI topics. We encourange any of our stakeholder partners to browse the PCORI training website linked below to find a training that fits our interests and knowledge level related to PCOR:
PCORI CME/CE Activities
Additionally, we recommend the following three CME course for CRITICAL healthcare professionals. These courses cover topics most directly relevant to the work of CRITICAL:
The Role of Patient-Centered Outcomes Research in the Current Healthcare Landscape: Setting the Stage
PCORI Methodology Standards: Basic Context, Role, and Development of Standards in Comparative Effectiveness Research
PCORI Methodology Standards: Standards Categories 1 & 2 — Formulating Research Questions and Patient Centeredness