The purpose of this survey is to understand how the COVID-19 pandemic is affecting the behavioral health of patients with intellectual and/or developmental disabilities (I/DD) of all ages.
The study, Impact of the Pandemic on Behavioral Health of People with Intellectual and/or Developmental Disabilities (IDD), is led by Jessica Solomon Sanders, MD (University of Colorado Departments of Developmental Pediatrics and Neurology) and Benjamin Margolis, MD (Access: Supports for Living).
What is involved in participation?
The survey takes about 10 minutes. Participation is voluntary and participants’ time and insights are greatly appreciated. All responses are anonymous. Results will only be available in aggregate.
Why is this project important?
Among those affected by the COVID-19 crisis, there are groups of disproportionally affected individuals, including individuals with intellectual and developmental disabilities (I/DD), where we are seeing not only increased morbidity and mortality, but decreased mental health as well. It is likely that many factors are contributing to decreased overall wellness, not only related to sequelae of infection, but also amongst those impacted by downstream changes required by the pandemic. We hope to elucidate the impact, and changes leading to this impact, through analysis of this survey.
How will this survey benefit our community?
Assessing the behavioral implications of the COVID-19 pandemic will allow care providers and I/DD care organizations to begin to understand the symptoms and areas of greatest need, helping providers to adjust and optimize care practices in accordance with the needs of the individuals served. Additionally, documenting the impact of various service delivery changes on mental health can contribute to policy changes that can impact the patients we serve.
How do I learn more?
E-mail Jessica.email@example.com, or firstname.lastname@example.org. This study has been approved by the Colorado Multiple Institutional Review Board (COMIRB; # 21-2546). You can also contact the Colorado Multiple Institutional Review Board (COMIRB) at (303) 724-1055.