Helpful Resources
PCA Lecture Series by Jamie Talan- A science writer covering the Brain with Newsday, a daily Newspaper in New York, became interested in PCA about 15 years ago.
Brain & Life - How to keep loved ones with dementia safe from firearms, by Paul Wynn
TCG - The Caregiver's Guardian, LLC - The Caregiver's Guardian is a Denver Colorado-based consulting service supporting, encouraging, and advocating for the family caregiver founded by Nadine Roberts Cornish in 2009
Dr. Macie Smith, Licensed Social Worker, Speaker, Author - Dr. Macie P. Smith is a Licensed Gerontology Social Worker and an award-winning Alzheimer's and Dementia educator and author with more than 20 years of experience working with aging and vulnerable populations
ReadClear:A digital reading aid for people with neurological visual impairment, or brain-related visual impairment (PCA). Download the app on the AppStore or get it on Google Play
Do I See What You See? Is a short film, directed by Simon Ball, about the experiences of people living with Posterior Cortical Atrophy (PCA), a rare form of dementia which affects the visual areas of the brain. Featuring 6 personal stories, this animated film recreates what it feels like to live with the knowledge that your brain might be playing tricks on you and that you are seeing differently from everyone else. Everyday tasks are beset with obstacles, but their stories also force us to question our own perceptions and whether we are truly seeing the world around us the way others do. Funded by Created Out of Mind and Alzheimer's Society, supported by Wellcome. Credit music by Valerie Blumenthal and Sound Design by Zai Tang
Alzheimer’s And Cognition Center – University of Colorado Anschutz Medical Campus
NIH NeuroBioBank – Information for Potential Brain Donation
Lewy Body Dementia Association
Clinical Trials – Alzheimer’s And Cognition Center
FINGER Study - Finnish Geriatric Intervention Study to Prevent Cognitive Impairment and Disability
Home Safety Checklist – Alzheimer’s Association
Fraying at the Edges – Article Published in The New York Times
Colorado Talking Book Library
Colorado Center for the Blind
National Federation of the Blind – Free White Cane Application
Audio Information Network of Colorado
Beyond Sight, Inc - Brain Injury Alliance of Colorado
MaxiAids - Products for Independent Living
Youcan Home Medical - Colorado's Premier Home Medical Supply Store
AppAdvice – Apps for Blind and Visually Impaired
AppleVis (AV) – Empowering Blind and low-vision users of Apple Products and Related Applications
Charlie Rose – The Brain Series, by Eric Kandel
Cognitive Neuroscience Society (CNS) – Why It Should Always Be The Season For Exercise
MedlinePlus – Seniors’ Health
Freedom Service Dogs
Canine Partners of the Rockies - One Person, One Dog, Partners in Life
Mountain High Service Dogs
Colorado Care Planning - Advance Care Planning Roadmap
Seniors Mobility - SeniorsMobility is reader-supported
Adaptive Plates and Utensils- DesignBoom or Adaptive Plates & Bowls
Medical Durable Power of Attorney (MDPOA)
To complete this in your electronic medical record (My Health Connection):
- Go to uchealth.org
- Click on "My Health Connection" in the upper right red banner
- Login
- Hover over "Health Record" to the right of your name in the top red banner
- Click on the first option, "Advance Care Planning"
- To the right, click on the blue circle with "MDPOA" next to it
- Click "I agree"
- Complete the document and save
Advance Directives:
Living Will Documents
- Five Wishes - Five Wishes is a complete approach to discussing and documenting your care and comfort choices. It's about connecting families, communicating with healthcare providers, and showing your community what it means to care for one another
- MOST Form - Colorado Medical Orders for Scope of Treatment (MOST) form has medical decisions about certain life-sustaining treatments