our-community-our-health
We would like to send a special thanks to the CAB for helping develop our project’s name, logo, and informative figure.

Our Community, Our Health


What is Our Community, Our Health? 

The overarching purpose of the Our Community, Our Health (OCOH) database is to improve the health and wellness of persons in the transgender and gender diverse (TGD) community. Our goal is to assemble a TGD-focused national patient-centered clinical data research network to create a quality improvement and research database to conduct impactful person-centered research based on the care provided and outcomes for TGD persons. We will build upon the secondary database we are currently building at University of Colorado Hospital and Children's Hospital of Colorado. The database follows the convention of the Observational Health Data Science and Informatics (OHDSI, pronounced “Odyssey”) community’s OMOP CDM. By conforming to this data model, we can more easily establish a national clinical data research network with others that also conform to this model.

ocoh
engage-communityENGAGE COMMUNITY – We want to ensure the research performed using the Our Community, Our Health (OCOH) database is driven by the transgender and gender diverse communities. We will engage the transgender and gender diverse communities in throughout the process of building and working with the OCOH database. Our engagement started with the UCHealth Integrated Transgender Program Community Advisory Board. Our next step is to engage a broader stakeholder board with community representatives from our national partners.
collect-patient-dataSECURELY COLLECT PATIENT DATA – We will rely on data collected through routine healthcare. No identifying data will be shared between institutions. All personal healthcare data will remain confidential and protected by the healthcare institution that collected the data. 
analyze-dataANALYZE PATIENT DATA – We are building the database with a common data language, following the convention of the Observational Health Data Science and Informatics (OHDSI, pronounced “Odyssey”) community’s OMOP CDM. using a common data language, will facilitate collaborations with other institutions. We will be able to analyze data from multiple institutions thus creating more robust results. 
improve-patient-careIMPROVE PATIENT CARE – We will ask research questions that directly apply to the care of TGD patients, such as which form of estrogen is safest for patients with an increased risk of blood clots? Healthcare organizations can also use the data base to better understand where they are falling short in providing comprehensive care for our TGD patients. For example, an organization may want to examine if they are routinely providing age-appropriate cancer screenings for their TGD patients. Once they have an understanding of the care they are currently providing, they can develop interventions to improve their screening processes.
share-knowledgeSHARE KNOWLEDGE – We will share knowledge gained from the database through research manuscripts, formal presentations, and through community outreach. We will work with our stakeholder board to ensure we disseminate knowledge gained back to the TGD community. 

Our Community, Our Health Updates

Our COMIRB Secondary Research Application was approved 11-May-2021 (Exempt). 

Funding Updates

Grant Title: Our Community, Our Health: Characterizing Health Outcomes for Transgender and Gender Diverse Patients of UCHealth Integrated Transgender Program and Children's Hospital Colorado TRUE Center for Gender Diversity

Grant Type: GIM Small Grant

Source: Division of General Internal Medicine at the University of Colorado

Principal Investigator(s): Danielle Loeb, MD, MPH and Lisa Schilling, MD, MSPH

Co-Investigator(s): Micol Rothman, MD, Sean Iwamoto, MD, and Natalie Nokoff, MD, MSCS

Grant Period: 02/01/2021 - 01/31/2022

Project Description: The overarching purpose of this proposal is to improve the health and wellness of persons in the transgender and gender diverse community. Our goal is to create a high-quality research database to be called, “Our Community, Our Health,” to support the principles of a Learning Healthcare System. The database will include transgender and gender diverse people of all ages seen at the UCHealth Integrated Transgender Program and the Children’s Hospital Colorado TRUE Center for Gender Diversity

COMIRB Protocol and Status: 20-2302, approved (exempt)

Collaboration Opportunities

If you or your institution are interested in collaborating on this or other related projects, please contact us for next steps.

Contact Information

Please feel free to contact Danielle Kline, MS, our Senior Professional Research Assistant, at:

Danielle.kline@cuanschutz.edu
303-724-7410 (office)
720-427-7569 (cell)

UCHealth Integrated Transgender Program
Our team of professionals at the UCHealth Integrated Transgender Program helps transgender and gender diverse adults in their journey to achieve their personal health goals.

 

TRUE Center for Gender Diversity
 The TRUE Center for Gender Diversity at Children’s Hospital Colorado is the only comprehensive care center in the Rocky Mountain region specifically set up for gender-diverse children, adolescents and young adults.