The “Cerebral Palsy Adult Transition Longitudinal Study (CPAT)” was conducted from 2014 –17, with the goal to address the unmet health needs of young adults with Cerebral Palsy (CP) after they transitioned from pediatric to adult healthcare.
Cerebral palsy (CP) is a childhood onset condition that includes a group of chronic, non-progressive disorders affecting body movement, muscle coordination, balance, and posture. It is the most common childhood disability, affecting approximately 3.5 per 1000 live births. 1Individuals with CP are at an increased risk for age-related morbidities due to functional impairments, maladapted growth, and the developments of secondary health conditions. Additionally, when many individuals reach adulthood, many services, interventions, or treatments are no longer available to them, 2typically because they have left the childhood healthcare system and adult providers either aren’t familiar with the ongoing treatment requirements of pediatric onset disabilities, or third-party payors seldom support interventions and assessments that are perceived to be only appropriate in children. As such, the CPAT study was developed to help improve the health of adults with CP as they transition to adult hood and continue to age.
To contact the CPAT Study Staff directly, please email CPAT@childrenscolorado.org
1) MacLennan AH, Thompson SC, Gecz J. Cerebral palsy: causes, pathways, and the role of genetic variants.
Am J Obstet Gynecol. 2015;213(6):779-788.
2) Murphy KP. The adult with cerebral palsy. The Orthopedic clinics of North America. 2010;41(4):595-605.