HDSA Center of Excellence at the University of Colorado Movement Disorders Center

Our Huntington's Disease (HD) Care clinic is designed to provide patients and their families with comprehensive medical care in a single visit. Emily Forbes, DO, MS, serves as the director of the clinic. She and her team are committed to making sure you receive the best care possible. The HDSA recognized our clinic for its multidisciplinary approach to care. The experts in HD care work together to help families plan the best HD care program throughout the course of the disease. 

To schedule an appointment, please call 720-848-2080.

If you are interested in speaking to our genetic counselor, Marrisa Lafreniere, please contact her by email.

Huntington's Disease Multidisciplinary Clinic

We encourage you to bring care partners and families with you. These visits focus on your well-being of you and your support team.

During our HD Clinic, many different specialists see you, your care partner, and family in one visit. At the University of Colorado Movement Disorders Center, these specialists include:

• Movement Disorders Neurologist
• Genetic Counselor
• Pharmacist
• Psychiatrist
• Spiritual Counselor
• Social Worker
• Registered Nurse
• Dietician
• Research Specialist

You remain in the same room during your whole visit. The specialists in the clinic work as a team to make sure all the patients' and care partners' needs are met. You see each specialist one at a time. At the end of your time together, each specialist will hand your chart and questionnaire to the next provider and discuss any relevant information with them. This method helps us make sure all your needs are met without the patient or care partner having to repeat themself to each specialist.

Are you interested in learning more about Huntington's Disease? Check out the videos from our 2024 Huntington's Disease Rocky Mountain Education Day. 

Huntington's disease (HD) research is essential to improving the lives of individuals and families affected by this inherited disorder. By participating in research, volunteers help scientists better understand HD, develop new treatments, and move closer to a cure. Recent breakthroughs have brought hope. These breakthroughs include gene therapies such as AMT-130, which has shown the potential to significantly slow disease progression. In addition, there are innovative Huntington protein-lowering approaches that are advancing through clinical trials. Researchers are also making progress in targeting the genetic mechanisms that drive HD, creating new opportunities for disease-modifying treatments. Every study contributes valuable knowledge that can lead to earlier interventions, improved care, and greater hope for future generations impacted by Huntington's disease.

Help Us Fight Huntington's Disease

For many patients and families in the Rocky Mountain Region, the University of Colorado Huntington's Disease Clinic has been a trusted source of expert care, understanding, and hope. Our multidisciplinary clinical team is dedicated to caring for the whole person compassionately by addressing the medical, emotional, and practical challenges of living with Huntington's disease while supporting loved ones every step of the way.

In addition to a robust clinic, our team is also committed to finding ways to improve the lives of patients living with Huntington's disease through clinical and investigator-initiated trials. These research efforts focus on improving symptoms, slowing disease progression, and exploring innovative therapeutic approaches, while offering patients access to emerging treatments and opportunities to shape the future of Huntington's disease care.

Many of the services that make our clinic special are made possible through philanthropy. Gifts from grateful patients help us develop clinical programs, improve access to care, and continue advancing research focused on better outcomes and quality of life.

Your financial gift will help fund research aiming to improve lives and slow down the progression of Huntington's disease; provide educational support for our community; and help ensure everyone facing Huntington's disease receives the same compassionate and quality clinical care.

If you are interested in supporting our Huntington's disease clinic, please contact our advancement office (303-724-8227 or advancement@cuanschutz.edu).

You can also use our giving portal:

1. Navigate to the giving platform using the link below.
2. Select or write in the amount you would like to give.
3. Under gift designations, expand the dropdown menu and select "Write in where you'd like to give your gift."
4. In the gift designation box, write "Movement Disorders Huntington's Disease Clinic."
5. Complete the rest of the form and submit it.