The Colorado Sickle Cell Treatment and Research Center wants to make sure that as you become an adult you are able to take good care of yourself. This includes learning how to be in charge of your own health, working with your doctors and other people who can help you get what you need to be as healthy as possible. You will also eventually need to see providers who know how to take care of adults. We want to help you through all the steps to make sure this goes well for you.
We work with patients, age 12 to 26, and their families. Together we will prepare you to start making decisions about your own health, rather than your parents doing it all the time. The Transition Coordinator will meet with you and your family at least once a year. Together we will develop a plan to help you figure out how to use the health care system. We will also think about things that change as you become an adult, like moving out of the house, going away to school or starting a job. When you turn 18, you are officially in charge of your own healthcare. We will also help you create a plan to be sure all your regular medical treatments keep going. We will make sure that both your pediatric and adult doctors and their staff have copies of the plan.
At age 18, you are a legal adult. We encourage you to keep your family involved in your care; however, we will need your permission to talk to them about any of your personal or health information.
Being an active participant in your clinic visits now will help you transition from your parent/guardian making decisions about your health to you making your own decisions. It will also improve your ability to take care of yourself and manage your
An active participant means becoming involved in the visit. Often when you were younger, your parent/guardian and the provider (doctors, nurses, and social workers) did most of the talking about you and your care. Now as you get older, you should start to join in the conversation.
To become an active participant means you should do the following 4 things:
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