Health care for children/adults with medically complex/multiple chronic conditions

Title: Health Systems Research Network for Children and Youth with Special Health Care Needs (CYSHCN)
Summary: We believe our project aligns with the purpose described by the Maternal and Child Health Bureau to establish and maintain an interdisciplinary, multi-site, collaborative research network that will promote and coordinate national research activities to strengthen the evidence base related to improving high quality care for children and youth with special health care needs.
Funder: HRSA/MCHB
Award Number: 1UA6MC31101​
Project Period: 09/01/2017-08/31/2022
Title: Enhancing Medication Safety in Children with Polypharmacy Using Parent-Reported Symptom Assessments
Summary: Pediatric polypharmacy poses a significant public health concern with serious, measurable consequences, especially for children with medical complexity and special healthcare needs. For these vulnerable children, the ability to recognize, monitor, and safely manage problems associated with medications in the outpatient setting is underdeveloped. The overarching objective of this career development award is to ensure the growth of Dr. James A. Feinstein, MD MPH, into an independent physician scientist who will expand knowledge in the field of pediatric polypharmacy and fundamentally improve medication safety practices for children with polypharmacy.
Funder: NIH
Award Number: 1K23HD091295
Project Period: 08/01/2017-07/31/2022
​​Title: Evaluation of Care Patterns for Adolescents and Adults with Down Syndrome
Summary: This project will establish the relationship between primary care models, adherence to preventive guidelines,
and use of the health system in adolescents and adults with Down syndrome using longitudinal Medicaid data
(2006-2010). The results of this analysis will serve to identify gaps in the existing care structure of adolescents
and adults with Down syndrome and to identify characteristics of successful models, all of which are necessary
to optimize care delivery and improve health outcomes in this vulnerable population.
Funder: NIH/NICHD
Award Number: 5R03HD082435
Project Period: 08/07/2015-07/31/2018​
Title: Effectiveness of ICP Monitoring in Pediatric Traumatic Brain Injury
Summary: This research is relevant to public health because traumatic brain injury is a frequent cause of morbidity and mortality in children. The overall goal of this research is to improve outcomes in children with severe traumatic brain injury by rigorously studying the effectiveness of intracranial pressure monitoring and other interventions recommended by experts but with limited supporting evidence.
Funder: NIH
Award Number: 7K23HD074620
Project Period: 05/01/2017-04/30/2018
​Title: The New Frontier: Using Health Care Data to Improve Population Health - CHORDS
Summary: The programs goal is to increase the number of public health agencies using the Colorado Health Observation Regional Data Service (CHORDS) and health care and mental health providers who contribute data. Partners will use CHORDS data to address obesity, mental health, cardiovascular disease and diabetes in their communities.
Funder: Multiple Funders
Project Period: 04/15/2016-04/15/2018​​​
​Title: Right Child, Right Services: Characterizing the Pyramid of Resource Needs for Children with Chronic and Complex Needs
Summary: Our project merges the efforts of three groups from Colorado, Boston and Washington, DC, with expertise in areas including health services research, health policy, and multiple Medicaid payers across a variety of states, to develop an issue brief on the topic with specific recommendations for research, practice and policy. The project will utilize an expert workgroup and a modified Delphi process, followed by literature searches from multiple perspectives and key informant interviews from outside the expert workgroup, to create an issue brief and likely other products that we feel will be of great use to policymakers, payers and clinicians over the next several years. We anticipate that this collaboration also has great potential to lead to future larger efforts in this area.
Funder: LPFCH
Award Number: 2016-01170
Project Period: 12/01/2016-02/28/2018