Title: Health Systems
Research Network for Children and Youth with Special Health Care Needs (CYSHCN)
Summary: We
believe our project aligns with the purpose described by the Maternal and
Child Health Bureau to establish and maintain an interdisciplinary, multi-site,
collaborative research network that will promote and coordinate national
research activities to strengthen the evidence base related to improving high
quality care for children and youth with special health care needs.
Funder: HRSA/MCHB
Award Number: 1UA6MC31101
Project Period: 09/01/2017-08/31/2022
Title: Enhancing Medication Safety in Children with Polypharmacy Using Parent-Reported Symptom AssessmentsSummary: Pediatric polypharmacy poses a significant public health concern with serious, measurable consequences,
especially for children with medical complexity and special healthcare
needs. For these vulnerable children, the ability to recognize, monitor,
and safely manage problems associated with medications in the
outpatient setting is underdeveloped. The overarching objective of this
career development award is to ensure the growth of Dr. James A.
Feinstein, MD MPH, into an independent physician scientist who will
expand knowledge in the field of pediatric polypharmacy and
fundamentally improve medication safety practices for children with
polypharmacy.
Funder: NIH
Award Number: 1K23HD091295
Project Period: 08/01/2017-07/31/2022
Title: Evaluation of Care Patterns for Adolescents and Adults with Down SyndromeSummary: This project will establish the relationship between primary care models, adherence to preventive guidelines,
and use of the health system in adolescents and adults with Down syndrome using longitudinal Medicaid data
(2006-2010). The results of this analysis will serve to identify gaps in the existing care structure of adolescents
and adults with Down syndrome and to identify characteristics of successful models, all of which are necessary
to optimize care delivery and improve health outcomes in this vulnerable population.
Funder: NIH/NICHD
Award Number: 5R03HD082435
Project Period: 08/07/2015-07/31/2018
Title: Effectiveness of ICP Monitoring in Pediatric Traumatic Brain InjurySummary: This research is
relevant to public health because traumatic brain injury is a frequent cause of
morbidity and mortality in children. The overall goal of this research is to
improve outcomes in children with severe traumatic brain injury by rigorously
studying the effectiveness of intracranial pressure monitoring and other
interventions recommended by experts but with limited supporting evidence.
Funder: NIH
Award Number: 7K23HD074620
Project Period: 05/01/2017-04/30/2018
Title: The New Frontier: Using Health Care Data to Improve Population Health - CHORDS
Summary: The programs goal is to increase the number of public health agencies using the Colorado Health Observation Regional Data Service (CHORDS) and health care and mental health providers who contribute data. Partners will use CHORDS data to address obesity, mental health, cardiovascular disease and diabetes in their communities.
Funder: Multiple Funders
Project Period: 04/15/2016-04/15/2018
Title: Right Child, Right Services: Characterizing the Pyramid of Resource
Needs for Children with Chronic and Complex Needs Summary: Our project merges
the efforts of three groups from Colorado, Boston and Washington, DC,
with expertise in areas including health services research, health
policy, and multiple Medicaid payers across a variety of states, to
develop an issue brief on the topic with specific recommendations for
research, practice and policy. The project will utilize an expert
workgroup and a modified Delphi process, followed by literature searches
from multiple perspectives and key informant interviews from outside
the expert workgroup, to create an issue brief and likely other products
that we feel will be of great use to policymakers, payers and
clinicians over the next several years. We anticipate that this
collaboration also has great potential to lead to future larger efforts
in this area.
Funder: LPFCH
Award Number: 2016-01170
Project Period: 12/01/2016-02/28/2018